extract from "The Mad Goat Lady" blog that I replied to:Bought your book “The Sun is my Enemy” years ago when I was first diagnosed with Lupus. I refused the steroid treatment, and using my own methods, got a lot better. My ana dropped and then I was ‘faking’ it. See questions sent to WA Lupus :
I have variously been diagnosed with :
Mixed connective tissue disease
Chronic fatigue
Lupus
(Attention seeking)
All due to wildly varying ANA numbers. A few months ago I had my highest reading ever ie >2560.
However, a test two weeks later was 40.
We only have The Royal Flying Doctor clinics every fornight, so I accepted her dismissal of previous diagnosis due to the normal 40 result.
I have , for the first time in years, now been swimming, albeit wearing a large hat. I am now starting to feel the ‘heavy’ ache in all my cells, that I have not felt for years. Used to respect the ‘The Sun is my Enemy’ , theory.
Have you heard of ‘intermitent Lupus’, or as I call it ‘fake lupus’?
Les